Brooke Eby, a widely recognized ALS advocate and social media creator who openly documented life with amyotrophic lateral sclerosis, died on Thursday night, October 1, 2026, at age 37. Her death came after a four-year journey with the progressive neurological disease and marked the loss of a prominent voice in the ALS community.
Her passing was confirmed publicly by Salesforce CEO Marc Benioff and acknowledged by the ALS Network, organizations that had worked closely with Eby through her advocacy and professional life.
Early Symptoms
Eby’s experience with ALS began years before she received a diagnosis. She had reportedly noticed unexplained symptoms as early as 2018, but it was not until March 2022, when she was 33, that doctors diagnosed her with ALS.
Rather than retreat from public life, Eby chose to document what followed. Her openness eventually turned her personal experience into a platform for education, community building and fundraising.
She frequently discussed the realities of living with a terminal neurodegenerative condition while maintaining the humor and personality that had defined her online presence long before her diagnosis.
Finding Her Voice
Under the social media name “limpbroozkit,” Eby developed a substantial following across platforms including TikTok. Her videos offered an unusually direct look at ALS, covering subjects that many patients may find difficult to discuss publicly.
Her approach combined sarcasm, humor, vulnerability and blunt honesty. Instead of presenting illness through a purely inspirational lens, she often showed the frustrations, awkward moments and practical challenges that came with losing physical abilities.
That authenticity helped her connect with people beyond the ALS community. Her audience grew into a network of people interested not only in her story but also in understanding the disease itself.
Building ALStogether
Eby’s advocacy eventually expanded beyond her own social-media channels.
In 2023, she founded ALStogether, an online peer-support community designed to help people with ALS and their caregivers connect with others facing similar circumstances.
The project reflected one of her central concerns: people diagnosed with ALS can suddenly find themselves navigating a complicated medical and emotional landscape with limited opportunities to communicate with others who truly understand their experience.
In 2026, ALStogether was integrated into the ALS Network, helping preserve the community and its resources beyond Eby’s individual social-media presence.
The move also strengthened the long-term connection between the peer community and an established organization serving people affected by ALS.
Salesforce Legacy
Eby’s advocacy existed alongside her professional career. She joined Salesforce in 2016 and continued working for the company while living with ALS.
Her experience ultimately influenced colleagues inside the technology company. Employees created ALSforce, an internal group focused on raising money for ALS research and supporting efforts connected to the disease.
Her connection with Salesforce also brought her advocacy into a corporate environment where fundraising, awareness and employee participation could extend her impact beyond her online audience.
Major Recognition
Eby’s work received significant recognition in 2026.
In June, the ALS Network honored her in San Francisco with the Dean and Kathleen Rasmussen Advocate of the Year Award. The organization recognized her contribution to changing conversations around ALS and helping patients build meaningful connections with one another.
The award came during a period when Eby’s own condition had become increasingly severe, making the recognition especially significant within the ALS community.
Final Months
As ALS progressed, Eby experienced increasingly serious bulbar symptoms, affecting functions such as speech, swallowing and breathing.
Despite those challenges, she continued communicating with followers and sharing her experience. Her later updates showed the increasingly difficult reality of living with advanced ALS while maintaining a public presence.
Her willingness to discuss those changes became another important part of her advocacy. Rather than separating herself from the realities of the disease, she continued bringing her audience into conversations about what progression actually looked like.
ALS Network President and CEO Sheri Strahl described Eby as someone who brought humor into difficult moments, spoke with fearless honesty and created connection for people who needed it.
Eby’s influence extends beyond the videos and posts that made her widely known.
Her work with ALStogether, her involvement with Salesforce, her fundraising efforts and her broader ALS advocacy created several avenues through which her work can continue.
For many people who encountered her online, however, her most distinctive legacy may be the way she changed the conversation around a devastating disease. She demonstrated that discussing ALS could include humor, frustration, ordinary life and difficult truths rather than focusing exclusively on medical terminology.
Her death at 37 closes a remarkably visible chapter in that advocacy, but the communities she helped establish remain.
Brooke Eby’s four-year battle with ALS became more than a personal story. It became a public record of living with the disease, a source of connection for other patients and caregivers, and a platform for greater awareness of ALS. Her work ensured that countless people confronting the same diagnosis did not have to feel quite as alone.